Terms and Conditions – Connecting Clinicians platform
Last updated: April 12, 2018
These Terms and Conditions ("Terms", "Terms and Conditions") govern your relationship with the Connecting Clinicians program (the "Service"), a part of the Nucleus ordering system (“Nucleus”) at https://nucleus.blueprintgenetics.com/ operated by Blueprint Genetics Oy and its subsidiaries ("us", "we", or "our").
Please read these Terms and Conditions carefully before using the Service.
Your access to and use of the Service is conditioned on your acceptance of and compliance with these Terms. These Terms apply to all users’ access or use the Service.
By accessing or using the Service you agree to be bound by these Terms. If you disagree with any part of the Terms then you may not use the Service.
Purpose and Scope
The aim of the Service is to make rare genomic data accessible to healthcare professionals and researchers around the world. The Service provides you with the opportunity to share knowledge and phenotypes for rare disease patients with a Variant of Uncertain Significance (VUS) and Likely Pathogenic variants. No identifiable health information is shared.
As a user of Nucleus, the Service is enabled for you by default and the Service may suggest you to share your contact information with other users sharing identical or similar genetic variants (see more in section Connections). None of your personal information will ever be shared with any other users without your prior explicit consent. You may opt out of the Service entirely at any time by notifying us in writing
You agree to only use the Service for clinical and/or scientific research purposes. All other uses of the Service are forbidden.
We offer Nucleus user accounts exclusively for qualified healthcare professionals and researchers in the field of human genetics. When you request an account with us, you must provide us information that is accurate, complete, and current at all times. Failure to do so constitutes a breach of the Terms, which may result in immediate termination of your account on our Service. We may request further information to verify your eligibility for the Service.
You are responsible for safeguarding the password that you use to access Nucleus, the Service and for any activities or actions under your password, whether your password is with our Service or a third-party service.
You agree not to disclose your password to any third party. You must notify us immediately upon becoming aware of any breach of security or unauthorized use of your account.
Our Service allows you to submit genetic variant data with associated phenotype information and open comments ("Content"). You are responsible for the Content that you submit to the Service, including its legality, reliability, and appropriateness. You agree not to submit any confidential information or identifiable health information to the Service.
By submitting Content to the Service, you grant us the right to use, modify, perform, display, reproduce, and distribute such Content on and through the Service and elsewhere.
You represent and warrant that you have the right to use it and grant us the rights as provided in these Terms and that the submitting of your Content on the Service does not violate the privacy rights, publicity rights, copyrights, contract rights or any other rights of any person.
The Service may suggest you to exchange contact information with other users who share identical or similar genetic variants in the Nucleus system (“Connection”). Such Connection may be suggested on the basis of variants reported on the Nucleus system by us and/or user-submitted Content. What constitutes an identical or similar variant will be determined at our sole discretion.
If you choose to accept a suggested Connection, we may share your name, title, healthcare facility/institution, email address and phone number (if provided) with the respective connected user. You may be given the same information about the connected user. A Connection only takes place if consented by both users. You may or may not engage in communication with users connected with you.
We will only help in establishing the initial communication link between users who have similar professional interests. Any information exchange will take place at the discretion of, and directly between, the users. We will not participate in or monitor the information exchange.
Users are solely responsible for any information which they may choose to exchange, as well as any actions taken on the basis of such information. We do not give any warranties or accept any responsibility for any information exchanged.
We may delete any Connections if so requested by you or a connected user.
Use of your information
We may collect and utilize user-submitted Content and data from established connections for the development of our services and for marketing purposes. Your personal information will not be shared with third parties without your prior written consent.
In addition, based on your Content and ordering history, we may contact you regarding clinical trials, available therapies or any other pharmaceuticals development related matter. If you do not wish to be contacted regarding the aforementioned matters, you can opt out of such contact at any time by notifying us in writing.
We may terminate or suspend your account immediately, without prior notice or liability, if you breach the Terms. Upon termination, your right to use the Service will immediately cease.
If you wish to terminate your account, please contact us to initiate the termination. You may also opt out of the Service without terminating your Nucleus account.
Limitation Of Liability
In no event shall Blueprint Genetics Oy, nor its directors, employees, partners, agents, suppliers, or affiliates, be liable for any indirect, incidental, special, consequential or punitive damages, including without limitation, loss of profits, data, use, goodwill, or other intangible losses, resulting from (i) your access to or use of or inability to access or use the Service; (ii) any conduct or content of any third party on the Service; (iii) any content obtained from the Service; and (iv) unauthorized access, use or alteration of your transmissions or content, whether based on warranty, contract, tort (including negligence) or any other legal theory, whether or not we have been informed of the possibility of such damage, and even if a remedy set forth herein is found to have failed of its essential purpose.
Your use of the Service is at your sole risk. The Service is provided on an "AS IS" and "AS AVAILABLE" basis. The Service is provided without warranties of any kind, whether express or implied, including, but not limited to, implied warranties of fitness for a particular purpose, non-infringement or course of performance. In particular, we cannot guarantee the accuracy or truthfulness of any user-submitted Content.
Blueprint Genetics Oy, its subsidiaries, affiliates, and its licensors do not warrant that a) the Service will function uninterrupted or available at any particular time or location; b) any errors or defects will be corrected; or c) the results of using the Service will meet your requirements.
These Terms shall be governed and construed in accordance with the laws of Finland, without regard to its conflict of law provisions.
Our failure to enforce any right or provision of these Terms will not be considered a waiver of those rights. If any provision of these Terms is held to be invalid or unenforceable by a court, the remaining provisions of these Terms will remain in effect. These Terms constitute the entire agreement between us regarding our Service, and supersede and replace any prior agreements we might have between us regarding the Service.
We reserve the right, at our sole discretion, to modify or replace these Terms at any time. If a revision is material we will try to provide at least 30 days’ notice prior to any new terms taking effect. What constitutes a material change will be determined at our sole discretion.
By continuing to access or use our Service after those revisions become effective, you agree to be bound by the revised terms. If you do not agree to the new terms, please stop using the Service.
If you have any questions about these Terms, please contact us